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Professor Jayashankar Telangana State Agricultural University, Hyderabad (Telangana State)

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20181
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Thesis Type: Ph.D × Subject: Human Development and family studies ×
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    ThesisItemOpen Access
    RESILIENCE OF CAREGIVERS ATTENDING TO ALZHEIMER PATIENTS
    (PROFESSOR JAYASHANKAR TELANGANA STATE AGRICULTURAL UNIVERSITY, 2018) HEMALATHA, M; NASREEN BANU
    A caregiver was an unpaid or paid member of a person's social network who helps them with activities of daily living. Care giving was most commonly used to address impairments related to old age, disability, a disease, or a mental disorder. Resilience was the process of adapting well in the face of adversity, trauma, tragedy, threats or significant sources of stress — such as family and relationship problems, serious health problems or workplace and financial stressors. It means "bouncing back" from difficult experiences. Caregivers were important in the daily lives of Alzheimer patients because they provide consistent care in a comfortable and familiar environment, both of which are necessary in providing care for individuals diagnosed with Alzheimer disease. Alzheimer disease was called a family disease, because the chronic stress of watching a loved one slowly decline affects everyone. An effective treatment will address the needs of the entire family. Emotional and practical support, counseling, resource information, and educational programs about Alzheimer disease all help a caregiver provide the best possible care for a loved one. Twin cities of Hyderabad and Secunderabad were selected for conducting the study, Ex-post facto research design was used for the present investigation to know the Resilience in caregivers attending to Alzheimer patients. The sample consists of 60 caregivers attending to patients with Alzheimer in early phase (14), intermittent phase xv (21) and in advanced phase (25).The sample was collected from both government and private hospitals. The obtained data was coded, scored, tabulated and analyzed using appropriate statistical measures. The major findings of the study were as follows. More than half (72%) of the caregivers were females. The age range of respondents in the study was between 20-55 years and above. With regard to educational status thirty percent respondents completed their intermediate education and more than half of them (67%) were not having any occupation (Housewife/retired) and thirty two percent were daughters of patients. More than half of the (78%) respondents belonged to Hindu community. Majority of the (80%) respondents were living with spouse and thirty six percent respondents were having family income more than 25000. Regarding patient demographic variables it was found that more than half of the (63%) patients were females and fifty five percent of patients were in the age group of 55-65 years with (47%) were in the middle stage of Alzheimer. Fourty two percent of patients were illiterates and majority of them were not having any occupation. Fourty percent of patients were mothers and it was observed from the present study that (40%) of patients current health was fluctuating. With regard to social support majority (80%) of caregivers received high social support from family members, friends and others which helps caregivers to build their emotional strength and resilience. Over-all caregivers Perceived average (53%) to high (38%) level of stress in attending to Alzheimer patients. More than of the (77%) caregivers were having high self efficacy. High self-efficacy relates to caregiver’s perception of positive aspects of the care giving experience. Among all the demographic variables of the caregivers, none of the variables had significant relationship on resilience, except religion. Religious expression seemed to facilitate care giving as it provided an emotional nourishment through prayer and reflection. There was no significant relationship between patient demographic variables on dependent variable resilience of the caregiver. Occupation was assumed to be the most crucial factor today and it not only has social importance but also economic, psychological and human significance. Self- efficacy, perceived stress, social support showed no significant relationship with resilience of the caregiver except self-efficacy. When self-efficacy was significantly beyond actual ability, it leads to an overestimation of the ability to complete tasks and thus it can be concluded that the individuals who have high self efficacy can build their resilience well. More over this resilience was an individual characteristic. The regression analysis was used to know the significant impact of independent variables on dependent variable resilience of the caregiver. None of the caregivers variables were found to be significant determinant of caregiver resilience, except relationship with the patient. But altogether these variables were influencing resilience of the caregiver with 22.8%. There was no significant influence of demographic profile of the patients on caregiver’s resilience. But altogether these variables were influencing resilience of the caregiver with 18%. The regression analysis showed that there was no significant impact of perceived problem stress and perceived multidimensional social support on dependent variable resilience of the caregiver. There was no significant impact of perceived problem stress and perceived multidimensional social support on dependent variable resilience of the xvi caregiver. But there was a significant impact of self efficacy on resilience of the caregiver. But these three variables perceived problem stress, perceived multidimensional social support and self efficacy altogether were influencing resilience of caregiver with 15.8%.